I’d never imagined the amount of administration that was required from all of this. I was forever filling out forms of all sorts.. applications to services I had no idea of. We are blessed to live in Melbourne, and as I am learning the support within the community is amazing. After my pead suggesting I […]
Still so many unknowns with Chiara… we will basically have to wait and see. The main concerns based on Chiara’s MRI are her ability to walk, talk or manage seizures if or when they occur. Although this is often expressed in more in medical terms such as motor skills.. fine motor skills….speech.. cognition… communication…independently moving around… all […]
Our wonderful O.T Amy organised for a rep from Active Rehab to come and visit and take us through options for transporting Chiara. Amy was aware that she wouldn’t relax in the current Mountain Buggy Pram, her muscles would stiffen, her face would go bright red as she held her breath, then she’d start to scream! […]