How amazing – the foot started like this when she was born.. then after HEAPS of casts as well as the following – we are seeing good results! A.F.O (Ankle Foot Orthosis) K.A.F.O (Knee Ankle Foot Orthosis) Boot’s and Bar Foot looking gooooooood!
We’ve been to the Speech Pathology clinic at RCH a few times, they provide assessment, treatment and consultations for children with communication and feeding or swallowing difficulties. Due to Chiara’s diagnosis, there has bee a lot of concern regarding her breathing and ability to swallow foods safely. And due to the area of her brain that has been effected, […]
Just checking that Chiara still sits comfortably in the Bingo seat, and if all goes to plan – we will order asap!
Our paediatrician has been wonderful, I am so thankful she was able to pick up Chiara’s diagnosis early. Some mum’s with PMG kids don’t find out for years, so whilst it has been devastating on so many levels, we have been able to get onto therapies early. As of March 27th, Chiara will have a […]
It was the night of my Birthday.. and I was feeling the love from beautiful friends and family reading their bday wishes on FB. It was getting late, Maur had turned off the internet but I had such a strong sense to check something.. so I jumped back online and luckily I did b/c I […]
Back at the RCH this time meeting with Rod, who is the head of Orthotics Level 2 of RCH.
Mauro calls me from work, short and sweet “We’re heading to Geelong to see a Miracle Healer, I’ll pick you guys up after work”… Sounds exciting, I firstly worry – how on earth are we going to travel all that way with Chiara who does not like to travel far… but I’m open to trying […]