What a day! Picked up my loves from Monash Children’s Hospital at 7am, then a quick super-food breaky at our fav café Merchant’s Guild (best chai in town!!).Then a pit stop at my parents home to bath Chiara and wash off all the glue that was all over her head from the sleep study due […]
Chiara was awake a lot during the night.. and after a few hours of trying to re-settle her unsuccessfully, we decided to flick on the TV and hello – an amazing doco was on. The Horse Boy (click here) – a chronicle of an autistic boy and his parents journey across Mongolia… how as a family they […]
Chiara smiled her way though todays swimming lesson! Getting those mini legs moving, yay! With the help of Nonna & Nonno we managed to tick off a lot of the home program ‘masking’ is one of the exercises that we do with Chiara.. A little bit about the oxygen enrichment program: It’s purpose is to increase blood flow […]
N.A..S.A came up with a list air-filtering plants after researching ways to clean air in space stations. As well as absorbing carbon dioxide and releasing oxygen, as all plants do, these plants also eliminate significant amounts of benzene, formaldehyde and trichloroethylene. A wonderful resource for anything to do with ensuring you have a healthy home environment, is Nicole’s Building Biology, […]
An extract from the recent report… Chiara is currently: attempting a forward commando crawl but is restricted by limited shoulder girdle mobility due to spasticity – lower limbs are patterning in extension. achieving 4-point kneel with support at pelvis able to sit in low booster seat with minimal pelvic support at hips/knees maintained in flexion. In […]
The weekly physio journey with Di… thank goodness for the Better Start Funding we have for these sessions. They have been so helpful for little C..
It was only a few months ago, that I raised questions about CP and Chiara, and it came back with a resounding YES – Chiara does have cerebral palsy, in fact she has what is known as Spastic quadriplegia (effecting all four limbs)… So what exactly is Cerebral palsy? ce•re•bral / of the brain pal•sy […]
Another wonderful session with Andrea at Myotherapy First, working to get the messages between her brain to muscle flowing and firing. Check out the video, Andrea, Mauro, Par and I were cheering her on when she started to move her legs!! (yes tears welled up in my eyes!) I learnt about some reflex’s today – the […]
Michael from Move Osteopathic Group is weaving his magic with Chiara, such an awesome session today. He was able to get a good release through Chiara’s little body, so cool to see her chilling out with him. Mick is Mauro’s cousin – we are so thankful for his help with Chiara.. Then we set-off for […]
Nothing quite like the force of a full-on flu to bring you horizontal, what a week.. no actually … what a year! I think Maur and I have been running on adrenalin for so long now, we’ve been balancing on the precipice week after week… our days are full with therapies, and our nights seem […]