Being a parent of a special needs bub’s comes with monumental changes to practically every aspect of your life. Life takes on an entirely new trajectory faster than you can imagine…
Every day a little piece of your heart breaks, as you witness your child’s daily struggle from the time they wake up, to the time they drift off to sleep… At times I find solace, when I see my daughter sleeping peacefully, no rigidity pulsing through her limbs from the cerebral palsy, no need to struggle when she tries to move, no need for special needs equipment to help her to stand or sit, no need for her to rely on us to ‘act as her body’… just a perfect little angel resting and restoring…. and slowly preparing for the new day ahead – where 9 out of 10 times – she wakes with a beaming smile! Children are amazingly resilient like that. I wonder how we would wake, knowing that we could not crawl, sit, walk.. or talk.. or control our limbs to do the very basic of human functions. And there she is, smiling at me every morning – and even this breaks my heart at times…
One of the biggest lessons I have learnt since Chiara was born, is that I needed my heart to break open… we all do at some stage of our lives. This is a fundamental process in Yogic and Buddhist philosophy, that in order for us to truly cultivate compassion and empathy, we need be prepared to take on the suffering of others.. and then to transform it … and we can only do this with an open heart…
How easy it is in life to breakdown, as opposed to break open. Through breaking open, and having the courage to embrace and even express your heartbreak, grief etc – you also break open to the deep reservoir of strength, peace and joy that lies within, opening to your true nature..
In Yoga, our true nature is known as : Sat Chit Ananda (Absolute Bliss Consciousness)
- Sat – translated as ‘being’ (or absolute non changing truth)
- Chit – translated as ‘consciousness’
- Ananda – translated as ‘bliss’ or ‘joy’
So to all mums of special needs children… when your heart breaks during those constant daily challenges… let it be so… I’m sure the ancient sages would agree – that it may very well be the place….
where you find your bliss….