July 2015

RCH Visit

Monday another big day at RCH. Still processing the day, lost for words this time around. Life expectancy is a fragile topic, no matter how resilient you are, it’s something that no parent ever wants to associate with their own child. I am incredibly grateful for our friends, for reflecting back to us what is possible […]

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Melbourne Town Hall

What a fabulous night with the Australian Institute of Hotel Engineer’s (AIHE) committee and their members. This particular meeting involved the Lord Mayor of Melbourne who shared a great presentation of all things Melbourne. The Lord Mayor also shared a story of another special needs family and how the community of Melbourne helped these parents and […]

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it’s all about love

Yay, we’re featured on “The Mighty”! www.themighty.com Their tagline: “We believe in the power of stories, the strength of communities and the beauty of the human spirit” It’s nice to get a reminder – that at the core of this journey, through the rough days – the most powerful thing that will get us through […]

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elephant in the room

Yesterday we did our organic food shop, it always astounds me the amount of food we go through in a week, but then again each of Chiara’s meals is jam-packed with as many nutrients as possible to help feed her brain and body. We rotate the food she eats daily and when I look into […]

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