Today we had another hearing test for Chiara at www.taralye.vic.edu.au. Taralye is the oral language centre for deaf children, and due to Chiara’s brain-injury and concerns around developing speech, we need to monitor via audiology and otology testing. This is our second visit, I recall taking Chiara there when she was about 7 months old, I didn’t feel […]
Yep – this picture sum’s up the past two years! Funambulism! the art of walking along a thin wire or rope. Not surprising that it’s commonly associated with the circus, which could be an analogy for our parenting gig this time around 😉 Balance: an even distribution of weight enabling someone or something to remain upright and […]
Wow, what an experience to have physio sessions at home. No crazy intense car-rides which means a stress free morning for us. Our physiotherapy sessions with Di are funded through Better Start, so even though the home visits are a lot more expensive it provides so much ease. Chiara is able to get the full […]
Trialling new special needs equipment is bitter sweet. I don’t think I’ll ever get used to the initial shock that I get when the equipment arrives. My heart skips a beat, I go into a silent panic then get on with it! The bitter, because I’m a mama of a child who has to fight […]
Prior to meeting Maur, I had already made the decision to leave the corporate world and embark on a whole new direction into health and wellbeing. Yoga was already a part of my life; it was the portal to balance, during my fast-paced corporate gig. It wasn’t until I travelled solo to Turkey, Greece and India that […]
Tickets are selling fast – don’t miss out!! Check out the amazing entertainment line-up! It’s going to be a fun night for a fabulous cause xx
Chiara had a great session with Di, although supported in standing you can see that Chiara has the determination and strength in her being! I’ve sat in many therapy sessions, watching Chiara work so hard to achieve movement. I’ve chocked back tears when she cries from frustration or discomfort. The physical endurance this little girls […]
Especially Colin! We found Colin when we posted a job on Airtasker, looking for someone to help assemble a large shed that we got from Bunnings. We have run out of storage and space with the extra equipment that Chiara requires. The shed has been sitting in our front yard for 6 months flat-packed, we finally got around to […]
As soon as you need it! I was sitting in the genetic office at the hospital waiting to hear the results from my daughters brain MRI scan. As I sat there, holding Chiara (my then, 5 month old baby), I was told ‘to prepare myself for a severely disabled child’, that Chiara had a serious brain-injury […]
Not enough hours in the day. The admin associated with the special needs world is extraordinary, ask any SN Mama and you will find that behind the therapies is a whole wide world of admin, which comes in the form of lengthy applications, funding forms 100’s of pages long, medical letters, appointment schedules, reports, case history, […]