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Physio Session #4

Mauro and I took Chiara to her fourth physio session,¬†it’s going to be a big road ahead but we’re in good hands ūüôā “Now this is not the end. It is not even the beginning of the end. But it is, perhaps, the end of the beginning‚Ķ”¬†Winston Churchill

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At the heart of it all..

I believe this to be 100% true, and given the added burdens on the family ¬†(financial, medical, ongoing disrupted sleep, overflowing paperwork, trying to source funding for equipment, weekly specialists appointments, her distress when travelling in a car-seat, the doctors advice, the conventional realm raising their concerns with¬†alternative therapies, the uncertainty of her future etc […]

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Physio Session # 3 with Di

Go Chiara, so amazing seeing her in body positions such as sitting, kneeling or standing.¬†Di is fantastic, I can’t rave about her enough. She is a Paediatric Physiotherapist, using a neuro-developmental approach to the management of children with movement disorders, as is the case with little Chiara… We are currently working on the following areas: […]

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Medical Meetings

Today we had a¬†meeting with some medical specialists – CMV testing came back as negative, so we can now rule this out as a possible cause for the Polymicrogyria. – We are going to to some gene testing¬†on¬†Collagen 4A1¬†and¬†Collagen 4A2, due to the¬†Hemosiderin¬†that was discovered on her MRI.   Sometimes after the hospital visits, feels […]

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Biodynamic Osteopathy

Another amazing therapy that is part of Chiara’s weekly regime is¬†Biodynamic Osteopathy. We are super lucky that Michael from Move Osteopathic Group¬†has been providing wonderful treatment for her. He’s awesome and we are so grateful for his time and efforts with Chiara.. I’ll get along to the next few appointments and get some photo’s too. […]

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Physio Session # 2

Very grateful to another PMG muma for passing on the physio details for Di, who specialises in mobility disorders. Di is associated with the Better Start Programe, so we can put the funding towards a great therapy, yay. Chiara is in good hands that’s for sure, at¬†the moment, Di’s working on Chiara’s rolling, as well […]

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Naturopath – NAET session #2

We met up with Maria Colossimo at Centre of Holistic Medicine, Chiara and I sat in the waiting room together. Another mum was next to me with her little son, who had downes as well as Leukimia.. he had just had a session of chemotherapy. Looking at both of us with our little babies on […]

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