live on-air!

Thank you to the amazing Eleonora & Tony at Rete Radio Italia for the opportunity to share Chiara’s Journey! http://streema.com/radios/Rete_Italia If you missed the radio segment you can cheek it out below. Love the Italian community! Don’t forget to grab your tickets to the FUNDRAISING night!!! It’s as easy as ONE click away!!! http://www.chiarasjourney.eventbrite.com they are selling […]

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RCH Visit

Monday another big day at RCH. Still processing the day, lost for words this time around. Life expectancy is a fragile topic, no matter how resilient you are, it’s something that no parent ever wants to associate with their own child. I am incredibly grateful for our friends, for reflecting back to us what is possible […]

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Melbourne Town Hall

What a fabulous night with the Australian Institute of Hotel Engineer’s (AIHE) committee and their members. This particular meeting involved the Lord Mayor of Melbourne who shared a great presentation of all things Melbourne. The Lord Mayor also shared a story of another special needs family and how the community of Melbourne helped these parents and […]

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it’s all about love

Yay, we’re featured on “The Mighty”! www.themighty.com Their tagline: “We believe in the power of stories, the strength of communities and the beauty of the human spirit” It’s nice to get a reminder – that at the core of this journey, through the rough days – the most powerful thing that will get us through […]

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elephant in the room

Yesterday we did our organic food shop, it always astounds me the amount of food we go through in a week, but then again each of Chiara’s meals is jam-packed with as many nutrients as possible to help feed her brain and body. We rotate the food she eats daily and when I look into […]

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finding our way

we’ve found ways to change nappies in the prone position we’ve found ways to avoid the myocolonus spasm repercussion we’ve found ways to move clothes over her tight and rigid limbs we’ve found ways to hold her when the cerebral palsy kicks in we’ve found ways to mange her through the night we’ve found ways of avoiding […]

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