Today we have a guest post by Mauro Mazzeo – Chiara’s Dad updating us with the recent presentation to Rotary of Warrandyte Donvale. It’s amazing that a double femoral osteotomy was avoided for Chiara, especially when she was due to have the operation in 6 months time. Share with us how things unfolded and how miracles […]
On behalf of our family we would like to thank Steve and Lynette Waugh for their incredible work that they do for so many children with rare diseases. The team at Steve Waugh Foundation are ‘somewhere to turn’ for children and young adults with rare diseases. Not only do they help with children who […]
Wow these last few weeks have been full of blessings! You know you have a pretty special community when the staff at your local cafe greet you with wide open arms and massive hugs. Ever since Second Home Eltham opened, we have been regulars there. It’s quite literally, our second home. We have rocked up to this […]
If you have been following our journey you will know that Chiara is not a great sleeper. In the past four years, we can count on our hands the rare times she has slept the night through. Sleep deprivation coupled with serious medical issues as well as the additional needs of Chiara, has made our […]
“I Do”. The lead up to our wedding day was like monsoon season, it rained non-stop. It was a welcome surprise to wake on Saturday to a beautiful sunny day, not a cloud in the sky. With all the hype that comes with such a day, I made it a priority to find some […]
Wow, three and a half years in the making! It’s been a long time coming and I cannot tell you how happy this moment made us! Mauro and I have put in a lot of hard work to get to this stage and especially little Chiara! It feels like we have won tatt’s, potential […]
What I would give to hear Chiara’s voice. The conversations we could have, oh my God if only. Through Chiara not developing speech (yet), I have had to learn to trust my intuition more than ever. Because sometimes, in certain situations it’s the only thing we have to communicate and understand one another. And another […]
Last month we got to meet up with beautiful Tessa (here’s a look at her beautiful blog post about our catch up). It was so good to meet her in person, it felt like meeting an old friend. Tessa and Eva have a very special place in my heart. I think the world of both of them, […]
It’s been a while since I’ve updated Chiara’s Blog! Where do I begin? This one is a biggie, grab a coffee or a stiff drink and read on 😉 March: I still have to post the blog from the (behind the scenes) 4-week intensive treatment in USA. The therapy was amazing, it was worth all […]