Blog

Latest from our journey

reality check.. or not?

We had a meeting today with our new (and awesome) key worker for Chiara, as well as the team from Active Rehab looking at new Special Needs Equipment. These meeting’s are always tricky, it’s like a flash-forward into our future life with Chiara, or not? We really have no idea what fate has installed for […]

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it takes a village or three!

Part 2: Monday morning we arrive at RCH. Chiara’s body is making some very unusual movements, like electric shocks through her body. She’s frightened and holding onto us tighter than usual. As the morning went on the intensity of the movements increased, and every time her body jolted she became more and more distressed. Dad […]

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My little red dot.

It’s been a big week emotionally and physically and it’s no surprise that I am exhausted and very run down with the flu. Alas, I have a wonderful Naturopath Gill Hart from Re-Med who is getting me back on track with Nature’s medicine – herbs! Life is full of duality and our journey with Chiara […]

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RCH Visit

Big morning at Royal Children’s Hospital – Chiara beaming her light and love to as many people as possible! Good news – no plaster cast or operation required (*at this stage). **BUT** I’m always prepared for the but’s with Chiara’s medical issues.. so here it is: Latest hip x-ray shows slight uncovering of left femur […]

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We need your help

Hello friends and family, We are thrilled that Chiara is progressing so well and are currently busy organising the next medical evaluation, treatment and other neurological therapies in America. We are seeing glimmers of hope, that Chiara may achieve a lot more than her diagnosis… We need your help!!! We are in the process of […]

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Mini miracles! ?

Both Mauro and I cannot wipe the smile from our faces, for the first time EVER Chiara has travelled peacefully in her car-seat, all the way into the city and back. An all time record for us! Since our return from America, we have noticed some pretty exciting changes in her overall tone and rigidity […]

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Revised IAHP Program

It’s been a busy time since we landed back in Melbourne, getting the revised IAHP program in order. We have so much to share from our recent trip to America, but for now I’ll focus on our new IAHP program for the next 6 months: Respiratory Patterning Program (manual and automatic) Manual: 90 min’s per […]

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Pure Love

Love when Chiara sleeps so peacefully.. resting & rejuvenating. During her waking hours her nervous system is in over-drive from the cerebral palsy, her muscles constantly switched on tight putting so much extra strain on her little body. So in these moments, as her body let’s go, I literally feel her whole being release and […]

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IAHP Revisit #2

Day 1 of Chiara’s medical evaluation & treatment. Good news – her neurological age has increased to 12months – she has made some positive gains in her sensory program – now we are working hard on helping her mobility and respiration. As we arrived today parents from all over the world carrying their brain injured […]

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