Latest from our journey

A constant reminder of Grace

Little Grace Maria is my almost-4 year old little girl. She has such an effervescent personality, full of passion, creativity, and so much love. She has been phenomenal over the past year, she’s been the most loving, fun and caring sister to baby Chiara. Our days off as a family were mostly spent at the RCH, so […]

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Paediatric Ophthalmologist!

We’ve seen many “ologists” to date, and today Chiara and I are off to Ivanhoe Eye Clinic for an hour long eye test with an Ophthalmologist. Clinically, our Mecy Paed thinks Chiara’s vision is okay, however in view of her developmental risk, she wants to make sure Chiara doesnt have any visual problems.  

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Speech Pathology & Sleep/Respiratory Checks – Monash Hospital & RCH

We’ve been to the Speech Pathology clinic at RCH a few times, they provide assessment, treatment and consultations for children with communication and feeding or swallowing difficulties. Due to Chiara’s diagnosis, there has bee a lot of concern regarding her breathing and ability to swallow foods safely. And due to the area of her brain that has been effected, […]

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