Cerebral Palsy

sleep salvation

Sleep. Finally, after two long years of chronically broken sleep we have a found solid rest again. It wasn’t the normal lack of sleep that most parents experience (from the newborn to toddler stage) of teething, wet nappies, colic etc, we know this kind, as Grace also took a while to sleep through. However, this time around, […]

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turning a new page

Doesn’t look like much BUT to us this is pretty awesome! Chiara using her hand/arm to turn the pages – gaining any type of independent motor skills is a miracle. Especially given she has quite a severe form of CP (quadriplegia -all four limbs effected), this alone is a huge feat.   More turning page […]

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amazing…

life with chiara & grace thank you to our incredibly supportive community in helping Chiara reach her highest potential – we are so grateful xoxox following is a video which highlight some of the therapies we do at home….. enjoy “and when you smile, the whole world stops and stares for a while, coz girl […]

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elephant in the room

Yesterday we did our organic food shop, it always astounds me the amount of food we go through in a week, but then again each of Chiara’s meals is jam-packed with as many nutrients as possible to help feed her brain and body. We rotate the food she eats daily and when I look into […]

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finding our way

we’ve found ways to change nappies in the prone position we’ve found ways to avoid the myocolonus spasm repercussion we’ve found ways to move clothes over her tight and rigid limbs we’ve found ways to hold her when the cerebral palsy kicks in we’ve found ways to mange her through the night we’ve found ways of avoiding […]

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all in a days work…

– new batch of meals for Chiara (took hours to create these little pockets of organic goodness!). If you think Chiara eats well, check out Grace’s breakfast. Go papa! – IAHP strongly recommend a water filter for Chiara (ever since we completed their initial course), long overdue but it’s great to finally have one as of yesterday! […]

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our giant leap of faith

What does sky-diving, Hindu Mythology and Yoga have to do with Chiara and her diagnosis? everything it seems 😉 I was driving along Punt Road on the weekend when I noticed 7 skydivers floating down from the sky underneath their parachutes. I wondered where they would land safely amongst tall city buildings and crazy Punt […]

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our morning..

We have already completed 40 masks and it’s not even 11am. Yes, we have been up with the birds.. Chiara sitting and digesting after her meal looking out to the park. I’m pretty sure she’s thinking “I will run in that park one day”! We just fed her, so as her tummy digests we use […]

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