Cerebral Palsy

Goodbye 2014.. welcome 2015 ♥ ♫ ♬

We’ve been playing this song all morning (listen and click here)!! Made me think of us and our new normal with Chiara.. and yes the sun does shine better on the other side… there is always an-‘other side’…. another perspective, another way of looking at the cards you have been dealt in life. And as much as […]

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RCH visit # I’ve lost count

Back at the hospital today and apart from the car ride – all went smoothly! New mould for the AFO (ankle.foot.orthosis), then downstairs to see Prue & Dr. Johnson for the new cast. Glad we got to see Michael before he dashed into theatre for an op, he’s amazing! Chiara will have the cast on […]

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Do you have 8 minutes to spare?

If so, relax and give yourself the gift of a relaxing meditation below. Loads more to come in the new year –  yay – watch this space! If there is one thing I have learnt from this special needs journey, is the importance of self-care… so that us mum’s, dad’s & carers can re-energise and continue […]

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Progress..

The IAHP Program is going well, yay! We are at our max of 40 masks a day (oxygen enrichment program) and have seen direct results already. Her overall tone has softened, this is especially noticeable given Chiara has Quadriparetic (4 limb affected) Cerebral Palsy. Often her little body is overcome with extreme hyertonia, causing severe stiffness and rigidity. Now her […]

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casts & christmas!

Another early morning adventure to RCH for little Chiara, a quick pit-stop to drop Grace at kinder beforehand however she decided to have a mini protest just after I signed her in… so the next thing I knew we were all back in the car and off to the hospital 😉 We met with Dr. Johnson who put […]

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1 step forward 2 steps back

There has been a lot happening in the world of Chiara. We are seeing some pretty amazing results with the NUTRITION program. All of Chiara’s meals are home made, with the correct ratio of protein, carb’s and fats. Yep, we measure everything she eats and upload it into a daily/weekly/monthly/yearly spreadsheet. It’s crazily time consuming, but […]

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neuroplasticity

I’m thrilled to have watched this TED talk!!!! Science says that adult human brains can regrow, rewire and reallocate function throughout life – however baby brain neuroplasticity is thought to be non-existent. This is exactly what I have heard from the Neuro-Genetic and Developmental Medicine teams at the Royal Children’s Hospital time and time again… “Natalie, the […]

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