A huge thank you to the team at Steve Waugh Foundation for inviting our family to be a part of the Rare Star Breakfast event at Sea World. For those who may not know, Steve Waugh Foundation is the only foundation of its kind in Australia supporting children and young adults with rare […]
Today we have a guest post by Mauro Mazzeo – Chiara’s Dad updating us with the recent presentation to Rotary of Warrandyte Donvale. It’s amazing that a double femoral osteotomy was avoided for Chiara, especially when she was due to have the operation in 6 months time. Share with us how things unfolded and how miracles […]
On behalf of our family we would like to thank Steve and Lynette Waugh for their incredible work that they do for so many children with rare diseases. The team at Steve Waugh Foundation are ‘somewhere to turn’ for children and young adults with rare diseases. Not only do they help with children who […]
Last month we got to meet up with beautiful Tessa (here’s a look at her beautiful blog post about our catch up). It was so good to meet her in person, it felt like meeting an old friend. Tessa and Eva have a very special place in my heart. I think the world of both of them, […]