We finally made it to the end of our Intensive Treatment Therapy for Chiara in the U.S of A! First and foremost, we would like to thank all the incredible people who helped us access this Neuro Movement therapy. We are so grateful for the ongoing support in helping Chiara reach her full potential. A special mention to […]
Prior to meeting Maur, I had already made the decision to leave the corporate world and embark on a whole new direction into health and wellbeing. Yoga was already a part of my life; it was the portal to balance, during my fast-paced corporate gig. It wasn’t until I travelled solo to Turkey, Greece and India that […]
As soon as you need it! I was sitting in the genetic office at the hospital waiting to hear the results from my daughters brain MRI scan. As I sat there, holding Chiara (my then, 5 month old baby), I was told ‘to prepare myself for a severely disabled child’, that Chiara had a serious brain-injury […]
Monday another big day at RCH. Still processing the day, lost for words this time around. Life expectancy is a fragile topic, no matter how resilient you are, it’s something that no parent ever wants to associate with their own child. I am incredibly grateful for our friends, for reflecting back to us what is possible […]
Chiara is enjoying the respiratory pattering exercises, we managed to get through three sessions today where she was relaxed and comfortable. We notice she makes a lot more sounds during and after the exercise, oh the day when she say’s “mama”, I dream about it often. The masking is going well, she gets such an amazing […]
Both Mauro and I cannot wipe the smile from our faces, for the first time EVER Chiara has travelled peacefully in her car-seat, all the way into the city and back. An all time record for us! Since our return from America, we have noticed some pretty exciting changes in her overall tone and rigidity […]
Woo hoooo Last Friday we had the 1st venture into the RCH where Chiara was relaxed for the entire car ride in her car-seat! After over 200 hospital trips, this is a big deal (for me anyway). Granted, Mum and I were in the backseat providing entertainment for her, but oh my gosh what a different […]
Chiara turns 2 next month (strong Taurean!) it’s going to be a different kind of birthday celebration for us, there will be joy and laughter but equally a slight pang of worry. Mainly that her little body isn’t catching up to her chronological age and what this may mean for the years ahead… Life is […]
‘Important encounters are planned by the souls long before the bodies see each other” – Paulo Coelho I absolutely believe this to be true, such a beautiful insight. Sending so much love to all the beautiful souls in my life – love that we have all been drawn together to share the journey. Here’s some […]
4.30am: Chiara wakes – bring her in bed to re-settle lots of forehead kisses 5.00am: keep pressing the snooze button on the alarm 5.30am: so tempted to press the snooze button again – but get up and meditate/yoga sesh 6.00am: pack for hospital visit (breakfast, snacks, lunch, bottles, clothes, nappies, referral forms, A.F.O’s, boots n’ […]