What does sky-diving, Hindu Mythology and Yoga have to do with Chiara and her diagnosis? everything it seems 😉 I was driving along Punt Road on the weekend when I noticed 7 skydivers floating down from the sky underneath their parachutes. I wondered where they would land safely amongst tall city buildings and crazy Punt […]
Go Chiara, we are lucky to get all of Chiara’s physiotherapy funded through Better Start for children with disabilities. Every little bit helps.
Anyone who has ever googled a personal or potential health concern will know how easy it is to spend hours sifting through the labyrinth of information available on the world wide web. At times it can be like a double-edged sword, whilst it is empowering to gain as much knowledge as possible, it can equally […]
Woo hoooo Last Friday we had the 1st venture into the RCH where Chiara was relaxed for the entire car ride in her car-seat! After over 200 hospital trips, this is a big deal (for me anyway). Granted, Mum and I were in the backseat providing entertainment for her, but oh my gosh what a different […]
Chiara turns 2 next month (strong Taurean!) it’s going to be a different kind of birthday celebration for us, there will be joy and laughter but equally a slight pang of worry. Mainly that her little body isn’t catching up to her chronological age and what this may mean for the years ahead… Life is […]
We’ve been playing this song all morning (listen and click here)!! Made me think of us and our new normal with Chiara.. and yes the sun does shine better on the other side… there is always an-‘other side’…. another perspective, another way of looking at the cards you have been dealt in life. And as much as […]
We have started to use S.P.I.O which stands for Stabalizing Pressure Input Orthosis. It’s the little blue suit that Chiara is wearing in the photos. It helps with stability and proprioceptive issues by providing deep pressure – which aids somatic input specific to balance and movement control. In Chiara’s case, we are focusing on her […]
We were told at the time of Chiara’s MRI findings that the likelihood of Chiara being able to develop speech was very unlikely.. mainly due to the severity of her brain injury as well as the area of the brain that has been injured… in her case the perisylvian area. The term “perisylvian” refers to the area […]
Chiara on the move… you get a taste for her determination in this brief clip. It’s not easy for her to coordinate her body to move, and I’m sure she gets frustrated.. but she has a spark in her eye and strength in her soul.. that will surely take her places in this lifetime.. Big […]
After two ultra sounds of Chiara’s brain, the tests came back clear. Everything looked okay and we held onto hope that all this meant for Chiara was she had a small head. Full stop. And she would develop perfectly, just as her big sister has… However because her head circumference was below the 3rd percentile, […]