Just when I think things can’t get any more intense, life seems to crank up the stress lev’s that little bit more. The past week has probably been one of the most challenging times for our tribe and mostly for little Chiara. There’s nothing worse than seeing your child in pain, and the post-op ward definitely […]
The RCH drill. Wake 5am (skip meditation & yoga b/c I’m keen to prep everything before poppets wake) get breakfast ready, pack Chiara’s hospital bag, get paper work ready, check appointment times, pack Grace’s kinder bag, get clothes ready, put load of washing on, hang the new batch on the line, and fold the other lot. […]
How quickly things can change. One moment we’re celebrating Chiara’s victories, the next we’re pacing up and down the hallway trying to manage an extremely unsettled baby at 2am. Chiara’s body is seizing up, she’s not breathing properly and her startle reflex is in over-drive. We know this space well, the hours after midnight, the […]
Big morning at Royal Children’s Hospital – Chiara beaming her light and love to as many people as possible! Good news – no plaster cast or operation required (*at this stage). **BUT** I’m always prepared for the but’s with Chiara’s medical issues.. so here it is: Latest hip x-ray shows slight uncovering of left femur […]
Woo hoooo Last Friday we had the 1st venture into the RCH where Chiara was relaxed for the entire car ride in her car-seat! After over 200 hospital trips, this is a big deal (for me anyway). Granted, Mum and I were in the backseat providing entertainment for her, but oh my gosh what a different […]
Back at RCH this morning for a new cast.. our apt was at 10am but we didn’t get called through for an hour or so. During the wait time, you get to watch all the hustle and bustle of this busy clinic. Doctors come and go, orthopaedic surgeons walk by.. children laughing, some crying… I’ve […]
Back home from one of those massive RCH visits, where a standard routine check turned into a long day of medial procedures, tests and tears. When the doctor told us we have to start from scratch with Chiara’s clubfoot treatment, my heart skipped a beat… and kept on skipping after listening to his comments whilst […]
In a recent post I outlined ‘A Day In the Life of Chiara & co.’ which gave an outline of all the therapeutic activities we do in a day, providing all goes to plan… but life is not always so smooth and predictable… so here is a snippet of the other days.. where her special-needs […]
So we go in for another cast, with all the slipped casts we did a few trips every week. We’re approx up to the 13th cast for Chiara! She’s a trooper!! Today we get a newbie, and after some additional concerns with a very high fever Chiarooocha and I are in for the night. So we […]