Thank you to Tessa for her blog post and podcast. You can view it here, and it will send you to iTunes for the links. I would also like to honour a beautiful little girl Eva, who through her short time on earth has left a huge imprint on the world of families with special […]
I tried to find something that hadn’t changed, something that since Chiara’s diagnosis, still felt relatively the same. Yet I didn’t get far, truth is everything looks different now. That’s probably because everything is different. I can’t look at a pregnant woman, or a new family, or a tiny weeny baby without seeing something so […]
What does sky-diving, Hindu Mythology and Yoga have to do with Chiara and her diagnosis? everything it seems 😉 I was driving along Punt Road on the weekend when I noticed 7 skydivers floating down from the sky underneath their parachutes. I wondered where they would land safely amongst tall city buildings and crazy Punt […]
Anyone who has ever googled a personal or potential health concern will know how easy it is to spend hours sifting through the labyrinth of information available on the world wide web. At times it can be like a double-edged sword, whilst it is empowering to gain as much knowledge as possible, it can equally […]
Woo hoooo Last Friday we had the 1st venture into the RCH where Chiara was relaxed for the entire car ride in her car-seat! After over 200 hospital trips, this is a big deal (for me anyway). Granted, Mum and I were in the backseat providing entertainment for her, but oh my gosh what a different […]
Chiara turns 2 next month (strong Taurean!) it’s going to be a different kind of birthday celebration for us, there will be joy and laughter but equally a slight pang of worry. Mainly that her little body isn’t catching up to her chronological age and what this may mean for the years ahead… Life is […]
More equipment whipped up from Mauro’s amazing Godfather, this is the standing frame to help Chiara bear weight through her legs and also help with the clubfoot treatment. Go Chiara!! The CP is quite obvious in the photo’s – her fists clenched tight. Slowly, the home is turning into a place of healing and therapy. […]
‘Important encounters are planned by the souls long before the bodies see each other” – Paulo Coelho I absolutely believe this to be true, such a beautiful insight. Sending so much love to all the beautiful souls in my life – love that we have all been drawn together to share the journey. Here’s some […]
4.30am: Chiara wakes – bring her in bed to re-settle lots of forehead kisses 5.00am: keep pressing the snooze button on the alarm 5.30am: so tempted to press the snooze button again – but get up and meditate/yoga sesh 6.00am: pack for hospital visit (breakfast, snacks, lunch, bottles, clothes, nappies, referral forms, A.F.O’s, boots n’ […]