Today we had another hearing test for Chiara at www.taralye.vic.edu.au. Taralye is the oral language centre for deaf children, and due to Chiara’s brain-injury and concerns around developing speech, we need to monitor via audiology and otology testing. This is our second visit, I recall taking Chiara there when she was about 7 months old, I didn’t feel […]
Prior to meeting Maur, I had already made the decision to leave the corporate world and embark on a whole new direction into health and wellbeing. Yoga was already a part of my life; it was the portal to balance, during my fast-paced corporate gig. It wasn’t until I travelled solo to Turkey, Greece and India that […]
Especially Colin! We found Colin when we posted a job on Airtasker, looking for someone to help assemble a large shed that we got from Bunnings. We have run out of storage and space with the extra equipment that Chiara requires. The shed has been sitting in our front yard for 6 months flat-packed, we finally got around to […]
As soon as you need it! I was sitting in the genetic office at the hospital waiting to hear the results from my daughters brain MRI scan. As I sat there, holding Chiara (my then, 5 month old baby), I was told ‘to prepare myself for a severely disabled child’, that Chiara had a serious brain-injury […]
Not enough hours in the day. The admin associated with the special needs world is extraordinary, ask any SN Mama and you will find that behind the therapies is a whole wide world of admin, which comes in the form of lengthy applications, funding forms 100’s of pages long, medical letters, appointment schedules, reports, case history, […]
I never would of dreamt that raising my daughter would involve any of this equipment! Alas, it does and we are grateful for our wonderful key-worker from Noah’s Ark who is amazing at helping with special needs equipment. Today she dropped off two bath seat options, Chiara isn’t able to sit and is getting heavier […]
Woke up to an inspiring message in my inbox today!! Put the hugest smile on my face, needed the reminder!!! As much as we try and stay positive about this new and adventurous journey, some days are still very challenging. Chiara suffers a lot from pain, her jaw locks down on her fingers causing a […]
Monday another big day at RCH. Still processing the day, lost for words this time around. Life expectancy is a fragile topic, no matter how resilient you are, it’s something that no parent ever wants to associate with their own child. I am incredibly grateful for our friends, for reflecting back to us what is possible […]
Yay, we’re featured on “The Mighty”! www.themighty.com Their tagline: “We believe in the power of stories, the strength of communities and the beauty of the human spirit” It’s nice to get a reminder – that at the core of this journey, through the rough days – the most powerful thing that will get us through […]
What an awesome surprise to wake up to this! Elephant Journal published ‘A Giant Leap of Faith’, they have 877K people on their FB page – big audience! Leaps of Faith Abound! Click here to read: Giant Leap of Faith Help to share with the world! The adventure continues….