Just a usual Sunday! * c unsettled thru night ? * 5am start ? * 4 hours sleep ? * finger bite 7am tear? * trying to weave in iahp program ? * tongue bite 8am tears ? * yay the sun is shining ??? & then a beautiful lunch with beautiful friends – xo
Let go of the ways you thought life would unfold: the holding of plans or dreams or expectations. Let it all go. Save your strength to swim with the tide. The choice to fight what is here before you now will only result in struggle, fear, and desperate attempts to flee from the very energy you […]
Chiara is enjoying the respiratory pattering exercises, we managed to get through three sessions today where she was relaxed and comfortable. We notice she makes a lot more sounds during and after the exercise, oh the day when she say’s “mama”, I dream about it often. The masking is going well, she gets such an amazing […]
What does sky-diving, Hindu Mythology and Yoga have to do with Chiara and her diagnosis? everything it seems 😉 I was driving along Punt Road on the weekend when I noticed 7 skydivers floating down from the sky underneath their parachutes. I wondered where they would land safely amongst tall city buildings and crazy Punt […]
“I choose to show up for my highest possible potential” How do we show up every single day, especially at times when we feel completely exhausted? As I write this, I am k.o’d with the flu. Naturally my body has decided to take a stance and I have taken all the right steps to help […]
Part 2: Monday morning we arrive at RCH. Chiara’s body is making some very unusual movements, like electric shocks through her body. She’s frightened and holding onto us tighter than usual. As the morning went on the intensity of the movements increased, and every time her body jolted she became more and more distressed. Dad […]
How quickly things can change. One moment we’re celebrating Chiara’s victories, the next we’re pacing up and down the hallway trying to manage an extremely unsettled baby at 2am. Chiara’s body is seizing up, she’s not breathing properly and her startle reflex is in over-drive. We know this space well, the hours after midnight, the […]
Big morning at Royal Children’s Hospital – Chiara beaming her light and love to as many people as possible! Good news – no plaster cast or operation required (*at this stage). **BUT** I’m always prepared for the but’s with Chiara’s medical issues.. so here it is: Latest hip x-ray shows slight uncovering of left femur […]
Love when Chiara sleeps so peacefully.. resting & rejuvenating. During her waking hours her nervous system is in over-drive from the cerebral palsy, her muscles constantly switched on tight putting so much extra strain on her little body. So in these moments, as her body let’s go, I literally feel her whole being release and […]
Lots happening in our world right now, getting ready for the trip to the USA for Chiara’s treatment, trying to keep up with the therapies and all the other stuff that comes along with being a Muma! We had a long day at the hospital on Monday, I wasn’t as prepared, I thought it was […]