grief

going with the flow

Now that the major festive celebrations  are over it’s time to get back into the rhythm of the IAHP home therapy. It’s like a double-edged sword these days, social outings are awesome but they can sometimes come at a cost. Chiara’s therapy being the main one, and the simple fact it is difficult leaving the house with […]

Read More

Thank you!

To all the amazing people who have touched our hearts and at times moved us to tears, with their incredible acts of kindness, love and generosity. Honestly, Mauro and I have been blown away  by the amount of incredible support for Chiara. YOU know who you are and thank you! They say it takes a village to […]

Read More

little wings

It’s a sad day in the Polymicrogyria community when a little PMG child looses their battle. Although our PMG babies are spread all around the world, it is still a relatively close community given PMG is so rare. A week or so ago another little PMG baby passed too early, the FB forums were inundated […]

Read More

Grace Maria….

There is a little effervescent person whom I owe so much gratitude to, the most adoring little soul who has been by our side every step of the way, since Chiara’s whirlwind-style entrance to the world. GRACE, beautiful Grace I cannot begin to thank you for your worldly wisdom and bright spark that has brought […]

Read More

elusive sleep….

It’s midnight… We have already spent many hours trying to settle a very unsettled little poppet. Earlier on, I had woken to her muffled intense cries to find her in the cot with her hand stuck in between her teeth..  Grace wakes up and runs down to Chiara’s bedroom and starts crying seeing Chiara so […]

Read More

Processing the news…

It’s interesting this life.. the people we meet, the timing of events and the way we receive, assimilate and respond to a variety of life events that come our way. Looking back, I always knew in some shape or for, something like this would take place in my motherhood years. Somewhere deep down in the […]

Read More