Letting go

more tests. more light.

Today we had another hearing test for Chiara at www.taralye.vic.edu.au. Taralye is the oral language centre for deaf children, and due to Chiara’s brain-injury and concerns around developing speech, we need to monitor via audiology and otology testing. This is our second visit, I recall taking Chiara there when she was about 7 months old, I didn’t feel […]

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live on-air!

Thank you to the amazing Eleonora & Tony at Rete Radio Italia for the opportunity to share Chiara’s Journey! http://streema.com/radios/Rete_Italia If you missed the radio segment you can cheek it out below. Love the Italian community! Don’t forget to grab your tickets to the FUNDRAISING night!!! It’s as easy as ONE click away!!! http://www.chiarasjourney.eventbrite.com they are selling […]

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elephant in the room

Yesterday we did our organic food shop, it always astounds me the amount of food we go through in a week, but then again each of Chiara’s meals is jam-packed with as many nutrients as possible to help feed her brain and body. We rotate the food she eats daily and when I look into […]

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finding our way

we’ve found ways to change nappies in the prone position we’ve found ways to avoid the myocolonus spasm repercussion we’ve found ways to move clothes over her tight and rigid limbs we’ve found ways to hold her when the cerebral palsy kicks in we’ve found ways to mange her through the night we’ve found ways of avoiding […]

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let go

Let go of the ways you thought life would unfold: the holding of plans or dreams or expectations. Let it all go. Save your strength to swim with the tide. The choice to fight what is here before you now will only result in struggle, fear, and desperate attempts to flee from the very energy you […]

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love and loss

Before we became a part of the “special needs world”, I had no idea just how many families actually lost their child from a particular disability. Beforehand, I would read stories in the paper, or see something on the news from time to time. Yet now, it seems common place… being linked into many Facebook support […]

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