Microcephaly

The two most loaded words..

“I Do”.   The lead up to our wedding day was like monsoon season, it rained non-stop. It was a welcome surprise to wake on Saturday to a beautiful sunny day, not a cloud in the sky. With all the hype that comes with such a day, I made it a priority to find some […]

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A miracle milestone!

Wow, three and a half years in the making!   It’s been a long time coming and I cannot tell you how happy this moment made us! Mauro and I have put in a lot of hard work to get to this stage and especially little Chiara! It feels like we have won tatt’s, potential […]

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everything looks different now..

I tried to find something that hadn’t changed, something that since Chiara’s diagnosis, still felt relatively the same. Yet I didn’t get far, truth is everything looks different now. That’s probably because everything is different. I can’t look at a pregnant woman, or a new family, or a tiny weeny baby without seeing something so […]

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it all ends with grace

it all began with a 20 week scan I knew this early on, that things weren’t going to plan. our new little baby had a right club-foot  and operations, splints & casting would be all it took, to fix her cute foot deformity and try and bring back some normality. the royal childen’s hospital soon […]

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balance

Yep – this picture sum’s up the past two years! Funambulism! the art of walking along a thin wire or rope. Not surprising that it’s commonly associated with the circus, which could be an analogy for our parenting gig this time around 😉 Balance: an even distribution of weight enabling someone or something to remain upright and […]

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live on-air!

Thank you to the amazing Eleonora & Tony at Rete Radio Italia for the opportunity to share Chiara’s Journey! http://streema.com/radios/Rete_Italia If you missed the radio segment you can cheek it out below. Love the Italian community! Don’t forget to grab your tickets to the FUNDRAISING night!!! It’s as easy as ONE click away!!! http://www.chiarasjourney.eventbrite.com they are selling […]

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elephant in the room

Yesterday we did our organic food shop, it always astounds me the amount of food we go through in a week, but then again each of Chiara’s meals is jam-packed with as many nutrients as possible to help feed her brain and body. We rotate the food she eats daily and when I look into […]

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