Polymicrogyria

Nana’s prophecy..

We have been busy in the world of Chiara. The IAHP program is ticking along, we are gathering all the information for the Interim Report which is exciting.  We have also reignited other brain development therapies over the past few weeks, such as NAET sessions, which are wonderfully explained in Kristen Morrisons book ‘Naturally Better […]

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Thank you!

To all the amazing people who have touched our hearts and at times moved us to tears, with their incredible acts of kindness, love and generosity. Honestly, Mauro and I have been blown away  by the amount of incredible support for Chiara. YOU know who you are and thank you! They say it takes a village to […]

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RCH visit # I’ve lost count

Back at the hospital today and apart from the car ride – all went smoothly! New mould for the AFO (ankle.foot.orthosis), then downstairs to see Prue & Dr. Johnson for the new cast. Glad we got to see Michael before he dashed into theatre for an op, he’s amazing! Chiara will have the cast on […]

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Progress..

The IAHP Program is going well, yay! We are at our max of 40 masks a day (oxygen enrichment program) and have seen direct results already. Her overall tone has softened, this is especially noticeable given Chiara has Quadriparetic (4 limb affected) Cerebral Palsy. Often her little body is overcome with extreme hyertonia, causing severe stiffness and rigidity. Now her […]

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casts & christmas!

Another early morning adventure to RCH for little Chiara, a quick pit-stop to drop Grace at kinder beforehand however she decided to have a mini protest just after I signed her in… so the next thing I knew we were all back in the car and off to the hospital 😉 We met with Dr. Johnson who put […]

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IAHP Oxygen Enrichment Program (Masking)

Our main focus on the IAHP program for the first month has been Physiology and Nutrition, we then move into the Physical and Intellectual aspects next month. Chiara’s nutrition has absolutely stepped up a notch, she has the most incredibly heathy diet! It’s so reassuring knowing that she is meeting all her daily nutritional needs, […]

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Myotherapy & Massage

Here are some happy snaps from the last two sessions with the amazing Andrea Williams at Myofirst, Balwyn. Love seeing Chiara so happy and it always astounds us how much her little body wants to move in these sessions…..they have a special bond 🙂 http://www.myofirst.com.au (highly recommend Andrea, check out hew site to see the […]

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a different view…

A wise old friend handed me this book many moons ago… I was unable to put it down when I first read it.. it’s nice to pick it up again.. ten years later and explore the incredible insights in every chapter. Interestingly this book has far more relevance now, than ever before. Now that we are […]

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elusive sleep….

It’s midnight… We have already spent many hours trying to settle a very unsettled little poppet. Earlier on, I had woken to her muffled intense cries to find her in the cot with her hand stuck in between her teeth..  Grace wakes up and runs down to Chiara’s bedroom and starts crying seeing Chiara so […]

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