Back home from one of those massive RCH visits, where a standard routine check turned into a long day of medial procedures, tests and tears. When the doctor told us we have to start from scratch with Chiara’s clubfoot treatment, my heart skipped a beat… and kept on skipping after listening to his comments whilst […]
So uplifting after going to see Chiara’s Naturopath today.. there is so much opportunity to support Chiara’s brain function and overall health and wellbeing through diet, lifestyle and supplements. Lot’s of information to share, but will contain this post to MTHFR…. WTF is MTHFR? 😉 Methylenetetrahydrofolate Reductase (MTHFR) is an inherited genetic variant which prevents […]
In a recent post I outlined ‘A Day In the Life of Chiara & co.’ which gave an outline of all the therapeutic activities we do in a day, providing all goes to plan… but life is not always so smooth and predictable… so here is a snippet of the other days.. where her special-needs […]
Being a parent of a special needs bub’s comes with monumental changes to practically every aspect of your life. Life takes on an entirely new trajectory faster than you can imagine… Every day a little piece of your heart breaks, as you witness your child’s daily struggle from the time they wake up, to the […]
We have started to use S.P.I.O which stands for Stabalizing Pressure Input Orthosis. It’s the little blue suit that Chiara is wearing in the photos. It helps with stability and proprioceptive issues by providing deep pressure – which aids somatic input specific to balance and movement control. In Chiara’s case, we are focusing on her […]
I’m thrilled to have watched this TED talk!!!! Science says that adult human brains can regrow, rewire and reallocate function throughout life – however baby brain neuroplasticity is thought to be non-existent. This is exactly what I have heard from the Neuro-Genetic and Developmental Medicine teams at the Royal Children’s Hospital time and time again… “Natalie, the […]
As a child I have beautiful memories of family holidays – in winter we would spend time at the snow and summer time at the beach or at our houseboat in Lake Eildon… it was the best! I always wanted to do the same with my children, take them to places in nature where they […]
It’s good to get back into the daily IAHP therapy home program, as well as Myotherapy and Physiotherapy…
Chiara smiled her way though todays swimming lesson! Getting those mini legs moving, yay! With the help of Nonna & Nonno we managed to tick off a lot of the home program ‘masking’ is one of the exercises that we do with Chiara.. A little bit about the oxygen enrichment program: It’s purpose is to increase blood flow […]
It was only a few months ago, that I raised questions about CP and Chiara, and it came back with a resounding YES – Chiara does have cerebral palsy, in fact she has what is known as Spastic quadriplegia (effecting all four limbs)… So what exactly is Cerebral palsy? ce•re•bral / of the brain pal•sy […]