RCH Visit

Monday another big day at RCH. Still processing the day, lost for words this time around. Life expectancy is a fragile topic, no matter how resilient you are, it’s something that no parent ever wants to associate with their own child. I am incredibly grateful for our friends, for reflecting back to us what is possible […]

Read More

Speech Pathology & Sleep/Respiratory Checks – Monash Hospital & RCH

We’ve been to the Speech Pathology clinic at RCH a few times, they provide assessment, treatment and consultations for children with communication and feeding or swallowing difficulties. Due to Chiara’s diagnosis, there has bee a lot of concern regarding her breathing and ability to swallow foods safely. And due to the area of her brain that has been effected, […]

Read More

Orthopaedic’s – Dr Michael Johnson

Another visit to Dr Michael Johnson, to check up on Chaira’s clubfoot treatment. Although we see Prue for the every day treatment, we get the odd booking with him which is great. Michael has special training and interest in Spinal Deformity Surgery (Scoliosis), Club foot, Brachial Plexus injuries and Neuromuscular diseases. Chiara is tracking along […]

Read More

Hello boot’s and bar!

Yay! No more casts, finally able to give Chiara regular relaxing baths.. watching her mini legs and feet move freely without the weight of a heavy cast bound to her leg… so the new procedure was to have these new funky (expensive!!) shoes on 23 hours a day! Sure, sounds easy right?

Read More

More casts and a new AFO @ RCH

So the boots and bar havnt been working, aside from the fact they are super restrictive… little Chiara seems to do a Houdini every time.. her mini right foot seems to magically slip out! Aside from the fact she was not sleeping so well with them.. at all! Yet another unhappy casting episode this time […]

Read More
Page 1 of 212