special needs

The two most loaded words..

“I Do”.   The lead up to our wedding day was like monsoon season, it rained non-stop. It was a welcome surprise to wake on Saturday to a beautiful sunny day, not a cloud in the sky. With all the hype that comes with such a day, I made it a priority to find some […]

Read More

everything looks different now..

I tried to find something that hadn’t changed, something that since Chiara’s diagnosis, still felt relatively the same. Yet I didn’t get far, truth is everything looks different now. That’s probably because everything is different. I can’t look at a pregnant woman, or a new family, or a tiny weeny baby without seeing something so […]

Read More

it all ends with grace

it all began with a 20 week scan I knew this early on, that things weren’t going to plan. our new little baby had a right club-foot  and operations, splints & casting would be all it took, to fix her cute foot deformity and try and bring back some normality. the royal childen’s hospital soon […]

Read More

balance

Yep – this picture sum’s up the past two years! Funambulism! the art of walking along a thin wire or rope. Not surprising that it’s commonly associated with the circus, which could be an analogy for our parenting gig this time around 😉 Balance: an even distribution of weight enabling someone or something to remain upright and […]

Read More

elephant in the room

Yesterday we did our organic food shop, it always astounds me the amount of food we go through in a week, but then again each of Chiara’s meals is jam-packed with as many nutrients as possible to help feed her brain and body. We rotate the food she eats daily and when I look into […]

Read More

finding our way

we’ve found ways to change nappies in the prone position we’ve found ways to avoid the myocolonus spasm repercussion we’ve found ways to move clothes over her tight and rigid limbs we’ve found ways to hold her when the cerebral palsy kicks in we’ve found ways to mange her through the night we’ve found ways of avoiding […]

Read More
Page 1 of 3123